Education
Calendar of Events
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HEALEY ALS Platform Trial Q&A
HEALEY ALS Platform Trial Q&A
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
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Making an Impact on ALS Advocacy in Your Community
Making an Impact on ALS Advocacy in Your Community
Join our upcoming Virtual Event: Making an Impact on ALS Advocacy in Your Community, on Wednesday, January 13, 2021, at 1:30 p.m. (Pacific). Request an invitation and RSVP here.
1 event,
HEALEY ALS Platform Trial Q&A
HEALEY ALS Platform Trial Q&A
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
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COVID-19 Vaccines Update: FDA and CDC Leaders Address the Rare Disease Community
COVID-19 Vaccines Update: FDA and CDC Leaders Address the Rare Disease Community
The National Organization for Rare Disorders (NORD), along with The ALS Association, Cystic Fibrosis Foundation and Muscular Dystrophy Association, is pleased to host a special webinar with leaders from the US Food and Drug Administration (FDA) and the Centers for Disease Control (CDC) to discuss the COVID-19 vaccines with the rare disease community. FDA recently […]
NEALS Webinar: Expanded Access to Investigational Drugs
NEALS Webinar: Expanded Access to Investigational Drugs
Expanded Access to Investigational Drugs Friday, January 15, 2021 4:00 - 5:00 PM EST Join us for a webinar on Expanded Access Programs (EAPs). In EAPs people with ALS who are not eligible for clinical trials are provided the study medication on a compassionate use basis. Our panelists will discuss the benefits and challenges surrounding EAPs […]
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HEALEY ALS Platform Trial Webinar: Pridopidine, Mechanism of Action and Science
HEALEY ALS Platform Trial Webinar: Pridopidine, Mechanism of Action and Science
Join us for a HEALEY ALS Platform Trial Webinar, "Pridopidine, Mechanism of Action and Science" with representatives from Prilenia, who will discuss Pridopidine, which is Regimen D in the HEALEY ALS Platform Trial. REGISTER HERE
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Webinar – ASK ME: ALS Research and Care in 2021
Webinar – ASK ME: ALS Research and Care in 2021
ASK ME: ALS Research and Care in 2021 Please save the date and join us with your coffee and breakfast on a Saturday morning! This informative event will feature leading ALS researchers and physicians who will explain recent research advancements, answer your important questions, and will give a preview of what to expect in the […]
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HEALEY ALS Platform Trial Q&A
HEALEY ALS Platform Trial Q&A
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
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My ALS Communication Passport to Quality Care with Karen Steffens, RN, CHPN, CCM
My ALS Communication Passport to Quality Care with Karen Steffens, RN, CHPN, CCM
My ALS Communication Passport to Quality Care is a tool for individuals living with ALS and their families. The 12-page Passport document, which is available in hard copy and online, helps nursing, medical staff and caregivers better understand the care needs and preferences of people living with ALS. For the person diagnosed with ALS, this […]
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The Hermstad Legacy: Advances in Treatments for ALS
The Hermstad Legacy: Advances in Treatments for ALS
On February 4th, we invite you to join special guest and ALS research advocate Ben Stiller, foremost ALS clinicians, leading researchers, and dedicated patient advocates to learn how Jaci and Alex Hermstad inspired the team effort that led to the development of jacifusen - a novel gene therapy for ALS. Those familiar with rare disease know […]
HEALEY ALS Platform Trial Webinar: CNM-Au8, Mechanism of Action and Science
HEALEY ALS Platform Trial Webinar: CNM-Au8, Mechanism of Action and Science
Join us for a HEALEY ALS Platform Trial Webinar, "CNM-Au8, Mechanism of Action and Science" with representatives from Clene Nanomedicine, who will discuss CNM-Au8, which is Regimen C in the HEALEY ALS Platform Trial. REGISTER HERE