Advocacy
Youth Action Week
On September 20-27, 2021—ALS Youth Action Week—kids, teenagers, and young adults will show the world that ALS must be cured. By holding a game competition, hosting an iced tea stand, starting a corn hole tournament, or educating others, you will reveal that ALS is not an incurable disease - it is an underfunded one. Please go […]
Notre Dame ALS Walk
University of Notre Dame Notre Dame, INNotre Dame Neuroscience Club sponsors an annual walk. Proceeds will benefit families dealing with ALS in St Joseph County via the Indiana ALSA Chapter. Please join us for a beautiful walk on campus with a stop at the Grotto to remember all lost to ALS. Walk steps off from Jordan Science Hall at 10am.
I am ALS AMX0035 Advisory Committee Watch
VirtualWhat’s an AdCom? It stands for an Advisory Committee. And on March 30, 2022, an Advisory Committee will meet to discuss Amylyx Pharmaceuticals treatment AMX0035. This is a crucial step in AMX0035’s path toward approval in the FDA. Together as a community we want to be there with you to watch it happen! Join us […]
AACT for ALS
VirtualEvent by Michelle Lorenz and No More Excuses! ALS Watch Dog Group Join April 4th at 7 pm ET, 4 pm PT The AACT for ALS was signed into law in by President Biden on December 2021. The bill was among the most cosponsored bills in the last half century. Congress just appropriated money for FY 2022. But […]
Last Day for Public Comment for AMX0035 Advisory Committee
https://www.regulations.gov/commenton/FDA-2022-N-1436-0001
ALS Town Hall: Meet Your ALS Orgs
VirtualALS Town Hall: Meet Your ALS Orgs #2 Introduction to Organizations in the ALS Space Tuesday, September 27, 2022 | 4:00 - 5:30pm EDT You are invited to attend our second event in the new Town Hall series “Meet Your ALS Orgs”. ALS TDI is thrilled to be partnering with I AM ALS, Answer ALS Research Program, and […]
More Than Our Stories Conference
Virtual or In PersonYes, your stories are compelling. So are your ideas. We are more than our stories. Please join us in person or virtually on February 14 and 15, 2023, for a day of idea-sharing followed by a day of advocacy action. Welcome to the sixth annual MTOS!
The #ALSinDC Flag Event
Dates: May 11th-13th, 2023 (set-up is May 10th) Location: Washington, DC We’re getting excited about our ALS Awareness Month event this year, and we hope you are, too! Similar to last year, we will be placing 6,000 flags on the National Mall, honoring those living with ALS, those we have lost to ALS, and those […]