Educate 2024

ALS does not discriminate. People of every age, gender, race, ethnicity, religion, sexual orientation, and nationality are diagnosed with ALS. However, not everyone has the same experience. For example, studies have found that African-Americans and Black people experience an eight-month delay from symptoms-to-diagnosis and have further progressed ALS than their White counterparts at time of diagnosis. ALSFRS-R scores and forced vital capacity were 4.73 points lower and 18.29% lower. While 8 months might not seem like much, it causes people to lose access to clinical trials, and quantity and quality of life improving measures, such as feeding tubes and non-invasive ventilation. This is unacceptable.

While not the only solution, diversity, equity and inclusion (DEI) programs at medical schools provide clinicians and institutions with education and initiatives that improve health outcomes of underserved and marginalized communities and increases understanding among clinicians and patients of all backgrounds. 

The Embracing anti-Discrimination, Unbiased Curricula, and Advancing Truth in Education (EDUCATE) Act, H.R. 7725, would cut federal funding to any medical schools that have diversity, equity, and inclusion programs. If passed, this bill would force medical schools to either end important programs that work to ensure everyone has equal access to health care, including clinical trials or lose federal funds. If this happens, medical professions will be unaware and unprepared to address health disparities.

Join us in opposing this bill by submitting this form.