Join The Many Shades of ALS Team for a powerful community conversation with:
– Cassie Holmes, Nurse Practitioner at Georgetown University with a neuroscience background, participates as a researcher in the Target ALS and ALL ALS studies, and advises ALS patients and their families of opportunities to participate in the studies.
– Dr. Nicholas Maragakis, Director of the Johns Hopkins ALS Clinical Trials Unit, treats patients with ALS through a multidisciplinary care approach while leading clinical trials and conducting cutting-edge research focused on understanding and targeting ALS progression using patient-derived stem cells and astrocyte biology.
– Laura Dugom, MPH – Clinical Research Scientist, Overseeing Target ALS’ Global Research Initiative, Laura advances ALS research through data-driven collaboration, with a background in rare disease epidemiology, health disparities, and a strong record of peer-reviewed publications and scientific conference contributions.
This session will:
– Provide clinical research education material (types of clinical trials, key definitions, sources of information regarding available trials, etc).
– Discuss the importance of participating in investigational and observational studies.
– Highlight the need of equity in clinical research will be spotlighted, and the benefits of diversity in clinical research.
– Introduce and explain how individuals can take part in natural history studies, even if they don’t qualify for a clinical trial.
Who Should Attend?
This webinar is intended for people living with ALS and their caregivers in communities that may lack ALS-specific resources, as well as those from underrepresented groups in research, including people of color, women, and military Veterans. However, anyone interested in learning more is welcome!
Together, we’ll build pathways toward inclusive clinical research, increasing the amount of ALS research information available for researchers, and a greater rate of participation in clinical research by all people living with ALS.
Join us!!!
Event Date: August 20, 2025
Time: 7:00 pm ET
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