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Find Your Community

Looking for more ways to get involved?

There are many ways to get more involved with and join the community at I AM ALS. You can:

  • Volunteer for a community team: These teams are led by people living with or impacted by ALS. They’re self-organized around a shared focus, strategy, and goals. These teams meet for an hour weekly or every other week. Click below to learn more about community teams that may be a good fit for you!
  • Get or provide support: I AM ALS’ Community Support Team provides many offerings help people living with ALS, their caregivers, and loved ones. You can become a peer mentor or peer support specialist to connect with and support others impacted by ALS one-on-one. Scroll down to learn more!
  • Find community: There are even more ways to find community at I AM ALS! Scribes of Strength gathers ALS advocates to share their story through the power of the written word, and raise awareness of the impact of ALS. Social hours offer an easy way to drop in and hang out with other advocates. Or join one or more of our six support groups for people living with ALS and caregivers.

Click the buttons below to learn more about all the ways you can find your community and get involved with I AM ALS.

Volunteer
Peer Support
Find More Community

Volunteer for a community team

Click on any of the images below to learn more about that community team and sign up to volunteer.

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Peer Support

The Peer Mentor program connects those impacted by ALS to one another to share their perspective of living with or caring for someone with ALS, what they found to be helpful, and to provide unique support. If you are interested in learning more about becoming a mentor to others impacted by ALS, click here.

Peer Support Specialists are people impacted by ALS who are trained to support others impacted by the disease. They share critical medical and research information, facilitate referrals to financial and insurance assistance resources, provide emotional support, and more. Involvement in this program requires a time commitment of 25+ hours of training and providing support for at least 3 hours each week. If you are interested in learning more about this incredibly rewarding volunteer opportunity, click here.

Our Peer Support programs are more than just pairing people together—it is its own special, connected community. The bonds between our mentors, mentees, and peer support specialists grows as they move together through challenges and victories, finding purpose and healing with each other. Does this sound like a community you’d like to join? Learn more.

I am in awe of how well matched my mentor and I are. We are able to compare notes and learn tips and tricks to help us try our best to remain independent for as long as we can. We have swapped pictures of our families and life events. Interestingly enough, our backgrounds and beliefs are similar, too. Compliments to the ALS “matchmaker.” My mentor is a 100% success story.

Monique, Peer Support Participant

I began mentoring with I AM ALS four years into my sister’s ALS journey as a way to give back to this supportive community. However, it soon became a profound experience of connection and healing. Having personally experienced the paralysis that accompanies the early days of this diagnosis, my goal was to help alleviate this anxiety for others. Little did I know the beautiful impact this would have on my own life.

Dana, Peer Support Participant

Find More Community

Find more community: There are even more ways to find community at I AM ALS! Scribes of Strength gathers ALS advocates to share their story through the power of the written word, and raise awareness of the impact of ALS. Social hours offer an easy way to drop in and hang out with other advocates. Looking to connect with others for support? Join one or more of our six support groups for people living with ALS and caregivers. Follow the links or click below to learn more!

By becoming a volunteer, you are agreeing to adhere to our Community Guidelines. Learn more about our Community Guidelines HERE.

 

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