I AM ALS is thrilled to share that the Senate Appropriations Committee took a major step forward to end ALS. In their approval of the FY 2026 Labor, HHS, Education Appropriations Bill, they recommended:

• A $25 MILLION increase for ACT for ALS
• Language urging ARPA-H to dedicate $30 MILLION for ALS and related neurodegenerative research
• $40 MILLION secured in the Defense Appropriations bill for the DOD CDMRP ALS Research Program

“This didn’t happen by chance: it happened because advocates raised their voices and demanded action,” said Andrea Goodman, CEO of I AM ALS. “But let’s be clear: we’re not done. To turn these committee wins into reality, we must keep up the pressure. Congress needs to know we’re watching, and I AM ALS is not backing down.”

Help keep up the pressure by contacting your legislators about these funding priorities here.

Read more about the FY 2026 Appropriations Bill here.