Join the Many Shades of ALS Team for a powerful community conversation aimed at educating people living with ALS and their families—both across the country and around the world, including those from underserved and underrepresented communities—about clinical research. This webinar will provide key information on the types of clinical studies, important terms and definitions, and how to find available research opportunities. It will also highlight the value of participating in investigational and observational studies, and feature personal insights from clinical research professionals and people living with ALS who have taken part in research. The session will conclude with an informative Q&A to address participant questions and support informed decision-making.
We’re excited to bring together a diverse panel of professionals and experts in ALS research, and advocacy to explore the challenges and opportunities in expanding equitable access to clinical research.
Together, we’ll build pathways toward inclusive clinical research, increasing the amount of ALS research information available for researchers, and a greater rate of participation in clinical research by all people living with ALS.
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Target Date: Mid-August, 2025 – Exact Date and time TBD