I lost my husband Grant to ALS, diagnosed 8/8/19, passed 11/4/21. I wasn’t even expecting him to die that day. I must have been living in denial still? I thought that morning we just had another hurdle to get over, but he lost consciousness in the morning and was gone that evening.

ALS sucks so bad, and no one will know until they go through it. I watched the love of my life waste away to skin and bones, feeling helpless, only being able to take care of him the as best that I could. Grant’s aunt passed from ALS in the 1960’s, so his was passed down to him. I can only hope it doesn’t get passed to any of my grandchildren. Grant was never one to complain, he let the disease take him without fighting, only taking prescribed drugs to combat the pain.

I had to work to pay the bills so I couldn’t stay home with him all day. Hospice suggested hiring help, but it was way too expensive for us to afford. I reached out to friends and family, asking them to volunteer to help him when I was at work. He lived 2 years and 2 months with the disease. I miss him still today and will for the rest of my years. Grant worked in auto body and painting, and he was proud of his work. He also loved NASCAR and other racing, and truck and tractor pulls. Pretty much anything car related. I miss him, but not really the car related things, lol!