Firefighter- Michelle’s Story

Join the #Fight2EndALS campaign.

A group of incredible ALS advocates created this campaign to capture stories from real people living with and impacted by ALS in the hopes of spreading awareness and inspiring action.

This is Michelle’s story, and with her story, we will pass the Benefit Act!


Federal and State policymakers have the power to influence the future of ALS patients, their caregivers, and their families.  Legislators are currently considering the BENEFIT Act, an important bill that would make the FDA’s use of patient reported outcomes more transparent.
We need your help right now, before it’s too late and we miss out on a critical opportunity for additional ALS support.
Share this film and tag your legislators to remind them how important it is to support veterans living with ALS, their caregivers, and their families.
We’ve made it easy.  All you have to do is fill out this form, and we will automatically create a social media post that shares this film and tags your US senators and representative.

The tweet: @Representative, watch Michelle’s story https://youtu.be/F9IEZAX502E?si=UlPTZndYticW6Igu, and make sure ALS doesn’t rob anyone else of their heroic spouse by supporting the S.526 BENEFIT Act #EndALS #Fight2EndALS

If you have an ALS story that needs to be told, submit your story and photographs for consideration to be part of the #Fight2EndALS social media campaign. Follow the step-by-step instructions on the form below to get the process started.

#Fight2EndALS #EndALS

Take Action

Back to Top

Join us for the 2024 Community Summit!

Join us in Washington DC from May 29th - June 2nd for the 3rd annual ALS Awareness Month flag display and inaugural Community Summit.

Learn more! Continue to the site