Event by Michelle Lorenz and No More Excuses! ALS Watch Dog Group Join April 4th at 7 pm ET, 4 pm PT The AACT for ALS was signed into law in by President Biden on December 2021. The bill was among the most cosponsored bills in the last half century. Congress just appropriated money for FY 2022. But […]
Please join us on Thursday, March 31st at 5:00 pm EST (4:00pm CST/2:00pm PST) for our weekly Q&A webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the HEALEY ALS Platform Trial and answer questions from the audience. This week we will be focusing the conversation on […]
We are excited to host EverythingALS Community Event: Antisense Oligonucleotide Therapy for ALS. We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. The meeting will be on Wednesday, March 30, 2022 at 4:00 pm PT -5:00pm Mountain Time -6:00pm Central […]
What’s an AdCom? It stands for an Advisory Committee. And on March 30, 2022, an Advisory Committee will meet to discuss Amylyx Pharmaceuticals treatment AMX0035. This is a crucial step in AMX0035’s path toward approval in the FDA. Together as a community we want to be there with you to watch it happen! Join us […]
Guest speaker Jaimin Shah, MD of the Mayo Clinic Jacksonville Jaimin Shah, M.D. is a physician in the Department of Neurology at Mayo Clinic in Jacksonville, Florida. His clinical interests focus on ALS and inflammatory myopathy. Dr. Shah is an award-winning teacher in the field of neurology, is a member of the American Academy of Neurology […]
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.) […]
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.) […]
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.) […]
Please join us for a conversation about Expanded Access Protocols (EAPs) in ALS, including recent progress in setting EAPs up alongside clinical trials. This webinar will be moderated by Dr. Jinsy Andrews and will feature Dr. Merit Cudkowicz, Dr. Sabrina Paganoni, Philip Green, and Sandy Morris.
Please join us on Thursday, March 17th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to the study team at the University of Kentucky. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions […]
Making Activities of Daily Life Easier in ALS - Thursday, March 17, 2022 from Noon to 1:00pm CT About the Program: This webinar will focus on how ALS may impact your daily routines and how an occupational therapist can offer tips to make daily living a little easier. You will learn about devices for getting through […]
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.) […]
