HEALEY ALS Platform Trial Q&A Webinar
Virtual
Free
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Events at this venue
ALS Town Hall: ALS TDI Demonstrates New Groundbreaking Biomarker Tools for ALS
VirtualALS Town Hall: ALS TDI Demonstrates New Groundbreaking Biomarker Tools for ALS Thursday, April 21, 2022 | 3:00pm - 4:30pm ET Recently, ALS TDI and Google introduced new groundbreaking digital tools that are able to objectively measure ALS symptom progression. These new tools have now been released publicly to anyone who might make use of them – including clinicians, […]
Free
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.) […]
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.) […]
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.) […]
HEALEY ALS Platform Trial Q&A Webinar
VirtualPlease join us on Thursday, April 14th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to Kuldip Dave Ph.D. vice president for research at the ALS Association. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial […]
Reimagining rare disease detection: Who needs to be at the table?
VirtualOverview Rare diseases pose unique challenges to the health care system. Unlike common diseases that affect millions, such as type 2 diabetes, a rare disease may have only 50 patients worldwide, spanning numerous countries, languages, and cultures. The detection of rare diseases—~75% of which have a genetic basis—is generally difficult and costly, often requiring sequencing […]
Free
New Gene Therapy for ALS
VirtualWe invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. The meeting will be on Wednesday, April 13, 2022 at 4:00 pm PT -5:00pm Mountain Time -6:00pm Central Time -7:00pm Eastern Time The meeting will be approximately 45-60mins long followed by […]
Where’s Our Operation Warp Speed
VirtualWe are pleased to announce that our webinar "Where's Our Operation Warp Speed?" has been rescheduled to Tuesday, April 12th from 12-1PM EST. Join us on the 12th to hear from distinguished speakers on this timely and important topic. Please feel free to share the attached flyer, which has the registration link embedded. Registration is free and open to the public. REGISTER HERE: https://www.eventbrite.com/e/wheres-our-operation-warp-speed-tickets-305012138517
Free
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.) […]
AACT for ALS
VirtualEvent by Michelle Lorenz and No More Excuses! ALS Watch Dog Group Join April 4th at 7 pm ET, 4 pm PT The AACT for ALS was signed into law in by President Biden on December 2021. The bill was among the most cosponsored bills in the last half century. Congress just appropriated money for FY 2022. But […]
Free