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Angela Normington

I believe I am the same nice good person I was. I am a 63 year old woman who retired after 30 years with the state of Wisconsin at different departments. It is going to be a year since diagnosed in July, they are not certain what I have exactly. I lost my voice and my...
Kimberly Weyker

Kimberly Weyker

Andy is participating in a Healey Clinical Trial for a new ALS medication; in his words, “Even if it doesn’t help me, it could help find a cure so others can survive ALS ten years from now.” My sweet, 6’7” husband of 35 years, Andy (58), was diagnosed one year ago...
Karen Madrigal

Karen Madrigal

So far, I’ve lost 3 brothers and my baby sister has ALS. I’m tired of watching my siblings die one by one. So far, I’ve lost 3 brothers and my baby sister has ALS. I have the C9orf72 gene for familial ALS. If my sister had access to Nurown, she would likely not be in...
Marc Vincent

Marc Vincent

No one should have to die this way ever again. My dad was the strongest and smartest man I’ve ever known. He was protective, kind, hard working, successful, independent, and full of life. He was diagnosed with ALS at the age of 52. He passed away a few months...