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Cristy Hardin

Cristy Hardin

Kurt’s bravery in embracing his vulnerability, and my privilege in being there to care for him, created a connection that went beyond friendship, leaving an impact on my life forever.

Julie Rodriguez

Julie Rodriguez

This disease is hard to see take over someone you love. Our dad Hugo Rodriguez was diagnosed and suffered 8 long months with ALS. He lost the ability to walk, move, and speak in a short period of time. My dad was loving, hard-working, funny, and very respectful toward...
Jerry Farmer

Jerry Farmer

My dad was officially diagnosed at the end of March 2019. The first signs that something was going on occurred in the fall of 2018. My dad was officially diagnosed at the end of March 2019. After a week in hospice, he died April 14, 2019.
Melissa L Armstrong

Melissa L Armstrong

We had no idea the C9orf72 familial gene was even in our family until my older sister got drop foot then a nerve conduction test. We had no idea the C9orf72 familial gene was even in our family until my older sister got drop foot then a nerve conduction test. We...