Victoria Purdum
5/2/22 I was diagnosed with ALS via a genetic test that showed a C9ORF72 mutation. My name is Victoria Purdum and I live in Maine. 5/2/22 I was diagnosed with ALS via a genetic test that showed a C9ORF72 mutation. My wife, Trudi Chase, is my caregiver. I have limb...
Summer Christian
My mom was 68 years old when she was diagnosed with bulbar ALS in January, 2019. My mom was 68 years old when she was diagnosed with bulbar ALS in January, 2019. She moved in with me and my family and spent her last 6 months enveloped in love until she took her last...
Stuart Williams
Deb’s model to others derived from her selflessness and her ability to bear the suffering of ALS with a sense of meaning, purpose, and gratitude for her life. On March 13, 2022, we said goodbye to Debra Murphy Williams, a loving wife, mother, friend, sister, and...