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Tonia O’Neil

Tonia O’Neil

This horrible disease took so much from her so quickly. Hello. My name is Tonia O’Neil. My mom Belinda McCluskey was diagnosed with ALS in November 2022 and passed away a short 10 months later September 11, 2023. This horrible disease took so much from her so quickly....
Alisa Cain

Alisa Cain

But I want you to know that there are also many amazing things that we have experienced since my diagnosis. One of the coolest things that has happened is that my friends and I tell each other “I love you” more often. Although we always loved each other, it mostly...
Selena Castro

Selena Castro

Our story, like many, has no known cause. My dad was diagnosed with ALS in August 2018. I didn’t know exactly what it meant when my mom told me, but after looking it up and seeing the words, ‘always fatal,’ I of course broke down. My dad was one of...
Justin Upchurch

Justin Upchurch

While ALS may determine how or why I die, I will not allow it to determine how I live my life. My name is Justin Upchurch. I’ve been married to my amazingly talented and beautiful wife for 20 years and we have three wonderful children. I’ve always been a fairly...