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Project ALS -The Kleiner Family Research Initiative

Virtual

Meredith Gonnason is an experienced creative professional and is currently the Senior Director of Multichannel Production at Synchrony Healthcare Communications. Since finishing her undergrad at Princeton University she has called many places home including Thailand, Los Angeles and Las Vegas. She currently lives in the Philadelphia area with her husband James and twin toddlers, Chloe […]

Physicians’ Perceptions of People with Disability and their Health Care

Virtual

https://iamals.org/action/physicians-perceptions-of-people-with-disability-and-their-health-care/ Having a disability shouldn’t lead to receiving substandard care, symptoms and primary health care concerns overlooked or pain or discomfort ignored. Unfortunately this happens all too often and isn’t talked about enough. I AM ALS is pleased to host ALS advocate Michael Robinson, MD and Lisa Iezzoni, MD, MSc in a conversation that brings […]

Brain Matters in ALS Confirmation

Virtual

Join us via zoom for an in depth scientific on why the brain matters in ALS. Moderated by: Doug McConnell, A Long Swim Co-Founder Hosted by: Dr. Hande Ozdinler, Scientific Director and Associate Professor of Neurology at Northwestern University Feinberg School, and Andrew Eisen MD., FRCPC, Professor Emeritus of Neurology at the University of British […]

Medicare Homecare Benefits

Virtual

From Center for Medicare Advocacy - Practical points as well as advocacy topics.

Suppressing Neuroinflammation in Neurodegenerative Diseases – Cell Therapy of Immune-mediated Dysfunction

Virtual

Neuroinflammation is a major driving force in the pathophysiology of the neurodegenerative diseases ALS and Alzheimer Disease. Such neuroinflammation is characterized by alterations of the immune system - primarily the presence of pro-inflammatory macrophages and microglia, as well as dysfunctional regulatory T-lymphocytes (known as Tregs). Together these promote neuronal degeneration and contribute significantly to the […]

ALS Learning Series: Talking with Children about ALS

Virtual

        Featuring Melinda Kavanaugh, PhD, MSW, LCSW, Associate Professor, Social Work and Director in Social Welfare at the Helen Bader School of Social Welfare at the University of Wisconsin-Milwaukee Despite the growing focus on people living with ALS and their adult caregivers, children and youth caregivers, or “young caregivers,” remain the most hidden […]

ALS Drug Development Webinar Series Part 1: Scientific Considerations

Virtual

Announcing a new NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from the Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, the clinical trial site level overview, and the importance of patient engagement. In this installment of […]