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Les Turner ALS Learning Series: Grief and Loss in Children and Youth in Families Living with ALS

Virtual

Our March webinar focused on talking with children about ALS. In April, we shift the discussion to how children cope with grief and loss. This webinar integrates Dr. Kavanaugh’s clinical expertise and many years of research with children and youth in families with neurological disorders, to guide families in starting the conversation about death and […]

ALS Drug Development Webinar Series Part 2: Regulatory Considerations

Virtual

Join us for the second installment of the NEALS webinar series on ALS drug development moderated by Dr. Jinsy Andrews from Columbia University. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, the clinical trial site level overview, and the importance of patient engagement. In […]

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, April 29th at 5:00pm EST  for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD will present this week’s updates on the HEALEY ALS Platform Trial with guest speaker Eduardo Locatelli, MD, MPH, from Holy Cross Hospital and answer questions from the audience. Click here to register! If you have […]

Maximizing Repositories to Accelerate ALS Research: Biofluids, Tissues, Cells and Data

ALS Biorepositories have expanded the opportunities for scientific investigation to ALS researchers worldwide. Many types of Biorepositories and related efforts exist to support research and to aid in therapeutic development. The NEALS Biorepository is housed at the Healey Center for ALS at Mass General Hospital and Barrow Neurological Institute and overseen by the NEALS Biorepository Committee. Samples and data […]

ALS Drug Development Webinar Series Part 3: Ethical Considerations

Virtual

Join us for the third installment of the NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from the Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, ethical considerations, the clinical trial site level overview, and the importance […]

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursdays at 5:00pm EST  for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu

MDA Engage ALS Virtual Symposium

MDA Engage ALS Virtual Symposium

Virtual

Join us for this MDA Engage ALS Virtual Symposium from 3:00-6:00pm ET where we discuss content such as best practices in clinical care, genetics, tips for daily living,  ALS research updates, drug development roundtable discussion,  and much more. There is no cost to members of the MDA community or healthcare providers to attend the event, […]

MDA Engage ALS Virtual Symposium

MDA Engage ALS Virtual Symposium

Virtual

Join us for this MDA Engage ALS Virtual Symposium from 3:00-6:00pm ET where we discuss content such as best practices in clinical care, genetics, tips for daily living,  ALS research updates, drug development roundtable discussion,  and much more. There is no cost to members of the MDA community or healthcare providers to attend the event, […]