Activate for the ACT for ALS in 2026!

Unless Congress takes action, The ACT for ALS will expire in September 2026. Join us on Wednesday, January 28th at 12pm ET to learn how the bill is transforming ALS research infrastructure and how our advocacy can ensure that progress continues! CLICK HERE TO SIGN UP

The ACT for ALS was signed into law in 2021 due to the extraordinary efforts of the ALS community. The impact of this legislation cannot be understated. The ACT for ALS made $100,000,000 available each fiscal year from 2022-2026! This funding has unlocked incredible progress, including:

*building new pathways to fund early access to ALS investigational therapies

*accelerating ALS cures and neurodegenerative disease therapy development through a public-private partnership

*increasing research on and development of interventions for rare neurodegenerative diseases through a new Food and Drug Administration (FDA) research grants program.

*providing access to promising therapies for people who were not eligible for clinical trials

In this webinar, you’ll learn about how the ACT for ALS came to be, the impact it has had to date since its passage, and how the community can come together again to ensure it is reauthorized by Congress this year. We don’t have time to go backward. Join us on Wednesday, January 28th at 12pm ET!